Category: Melanoma Stories
Amy Fights for Acral Melanoma to be Seen
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 28 October 2020 In Melanoma Stories
For patients diagnosed with acral melanoma today, Amy offers the following advice: “You aren’t alone. If you find a spot – any spot, really that looks different or concerns you – get it checked out. Advocate for a biopsy because doctors don’t always know what they are looking for when it comes to acral melanoma.”
Fueling a Revolution: Driving Research Forward
MRA is powering a revolution in melanoma research. A revolution that is not only benefiting patients with melanoma but also impacting the field of oncology at large.
Take Life as it Comes
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 12 October 2020 In Melanoma Stories
At her local hospital, Karen was told she had both lung and brain cancer. She was in shock – she had been feeling great and was diligent about eating right and exercising. It wasn’t until she met MRA-funded investigator, Dr. Rizwan Haq at Dana-Farber Cancer Institute that she learned that her tumors were actually caused by malignant, stage 4 melanoma. Following radiosurgery and combination immunotherapy, Karen’s melanoma is stable.
Elizabeth McGowan & Outpedaling 'The Big C'
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 18 September 2020 In Melanoma Stories
To celebrate her fifth anniversary of being NED, Elizabeth McGowan set out on a 4,250- mile adventure across the United States, coined 'Heals on Wheels.' Now, 20-years later, the Pulitzer Prize-winning author shares insight into her journey with melanoma and her solo bicycle trek in her book: "Outpedaling ‘The Big C’: My Healing Cycle Across America."
Working to Take the Luck Out of Melanoma
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 16 August 2020 In Melanoma Stories
Ellen believes that research is the best tool we have to “take the luck” out of melanoma. She’s proud to be involved with an organization – and a cause – that is relentlessly moving forward in search of answers, new treatments, and ultimately a cure for melanoma. “I know that given the right support, research will get us there,” she says.
Putting Her Faith in Research & Her Doctor
All things considered, things are looking up for Margaret Oplinger. A marble-sized tumor is all that’s left of her Stage 4 melanoma; and her ongoing treatment, every-other week with nivolumab (Opdivo®), will hopefully enable her immune system to attack – and eliminate – this last remnant.
From Dermatology to Treatment: Second Opinions, Clinical Trials & becoming Your Own Best Advocate
Through his journey with melanoma, Patrick has learned the importance of always being his own best advocate, getting second opinions, and considering clinical trials.
Facing Melanoma Together
Measuring the progress of melanoma research through numbers isn’t hard. What’s harder to quantify – or to even put into words – is the individual impact that this research makes in the lives of patients and their loved ones. It's this human impact that Facing Melanoma Together, a series of black and white photographs, helps bring to the forefront.
From Anger to Hope – One Uveal Melanoma Patient’s Journey
Unlike many of the stories featured by CureMelanoma.org, Melody Burchett’s journey with melanoma didn’t start at her dermatologist’s office. Instead, Melody's journey with melanoma began with a pair of broken glasses that needed replacing, ASAP.