Category: Melanoma Stories


Toni English's Journey from Mucosal Melanoma Patient to Advocate

By Renee Orcione, MRA Digital Engagement & Communications Manager | 28 February 2024 In Allies & Partnerships, Melanoma Stories, Science, Treatment

In the five years since overcoming Stage 4 mucosal melanoma, Toni English has found her life’s passion advocating for patients and families and championing research to answer the many questions that surround this rare melanoma.

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Recordings from MRA's 2024 Patient Forum

27 February 2024 In Allies & Partnerships, Events, Melanoma Stories, Prevention, Science, Treatment

MRA’s 2024 Patient Forum brought together melanoma patients, survivors, advocates, and their loved ones to provide lay-friendly, state-of-the-science education and promote collaboration.

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Improving Communication With Your Melanoma Care Team

20 February 2024 In Allies & Partnerships, Events, Melanoma Stories, Treatment

Good communication is always challenging but can be especially so when you are undergoing treatment for melanoma. That’s because navigating our modern healthcare system is often an exercise in decoding complex jargon and knowing the right questions to ask while managing stress and other strong emotions.

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Where Innovation Meets Impact: MRA 2023 Annual Report

23 January 2024 In Allies & Partnerships, Events, Melanoma Stories, News, Policy, Prevention, Science, Treatment

MRA is a world leader in advancing transformational science that has caused paradigm shifts in what it means to be diagnosed with and treated for melanoma. The innovative research we support isn’t just changing science — it’s giving patients more treatment options that translate to longer, fuller lives.

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Overcoming Brain Mets & LMD: Sean Wachter’s Melanoma Journey

By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 22 January 2024 In Melanoma Stories, Science, Treatment

Ten years ago, Sean Wachter never expected to have a loving spouse, children, or a life that feels worth living. That’s because, by his own admission, he’s done more living in the past 7 years than he did in the prior 31 as he overcame stage 4 melanoma with leptomeningeal disease...

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Registration Now Open: MRA's 2024 Patient Forum

11 December 2023 In Allies & Partnerships, Events, Melanoma Stories, News, Policy, Prevention, Science, Treatment

Registration for MRA's Melanoma Exchange Patient Forum, held in-person in Washington DC and virtually on Wednesday, February 21, is now open. Register now to hear from leading experts in the melanoma field and have the opportunity to ask questions, discuss, and network with other people who are going through their own melanoma journey.

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Perseverance through Advanced Melanoma: Clay Hummer

By Renee Orcione, MRA Digital Engagement & Communications Manager | 15 November 2023 In Melanoma Stories, Prevention, Science, Treatment

Clay Hummer is no stranger to perseverance, and his journey to today was not always easy. He gave up a career in law that he worked hard for to get completely sober and start a fresh chapter, moving to Texas in his 40s where he met the love of his life Christi. So, when he was diagnosed with melanoma shortly after his move, he knew quite a bit about overcoming a challenge.

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A Message from Our CEO on Veterans Day

By Marc Hurlbert, PhD, MRA Chief Executive Officer | 11 November 2023 In Allies & Partnerships, Events, Melanoma Stories, News, Policy, Prevention, Science, Treatment

On this Veterans Day, we want to express our sincere gratitude and appreciation for the brave individuals who have served and sacrificed for our country. We also want to use today to raise awareness about the unique challenges faced by veterans when it comes to increased risk of developing melanoma,...

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Navy Veteran Ashlynn Soellner's Melanoma Journey

By Renee Orcione, MRA Digital Engagement & Communications Manager | 8 November 2023 In Melanoma Stories, Prevention, Treatment

Shortly after her active-duty career in the Navy came to an end, Ashlynn began noticing new moles on her body. She scheduled an appointment with her dermatologist, where a lesion on her shoulder was biopsied. Just a couple weeks later, she received an official diagnosis: she had melanoma. “You never think cancer will happen to you, especially when you are young. I was in complete shock,” said Ashlynn.

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A History of Sunburns and an Early Stage Melanoma Diagnosis: Jill Roth

By Renee Orcione, MRA Digital Engagement & Communications Manager | 26 October 2023 In Melanoma Stories, Treatment

Jill Roth has lived her entire life in Dennison, Ohio. There, she grew up in a close-knit family, eventually started her own, and later became a caretaker to her elderly parents. Now retired, she looks back on her upbringing fondly – especially the countless summers spent by the pool.

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