Category: Melanoma Stories
MRA's Latest Research Report: The Melanoma Research Community Reunites
11 August 2022 In Allies & Partnerships, Events, Melanoma Stories, News, Prevention, Science, Treatment
Each year, MRA brings together hundreds of people from across the melanoma research community to exchange ideas, report on scientific progress, celebrate achievements, and mourn our collective losses.
Melanoma Clinical Trial Success Story: From Patient Volunteer to No Evidence of Disease
By Renee Orcione, MRA Digital Engagement & Communications Manager | 3 August 2022 In Melanoma Stories, Science
This Mom of three enrolled in a neoadjuvant clinical trial for Stage 3 melanoma. After two infusions of Opdualag, Shannon underwent a successful surgery where doctors removed all affected lymph nodes and tested them, revealing No Evidence of Disease (NED).
25-Year-Old Melanoma Patient Runs Marathon to Support Research
By Renee Orcione, MRA Digital Engagement & Communications Manager | 24 June 2022 In Melanoma Stories
Camille Price was 24-years old when she was diagnosed with Stage 3 Melanoma. After undergoing surgery and an additional treatment to reduce the likelihood of her melanoma returning, she chose to run the Miami Marathon in support of the Melanoma Research Alliance.
Why I Step - Lynn Merrill Iverson
By Renee Orcione, MRA Digital Engagement & Communications Manager | 25 April 2022 In Allies & Partnerships, Events, Melanoma Stories
In 2021, as part of MRA’s inaugural Step Up for Melanoma challenge, Lynn joined hundreds of supportive and passionate individuals across the country to share Bert’s story, keep his memory alive, raise awareness, and complete 310,000 steps during Melanoma Awareness Month.
Recordings from MRA's 2022 Patient Forum
16 March 2022 In Allies & Partnerships, Events, Melanoma Stories, News, Policy, Prevention, Science, Treatment
MRA’s Melanoma Exchange Patient Forum, held in-person in Washington DC and virtually on March 9, 2022, brought together hundreds of melanoma patients, survivors, advocates, and their loved ones to provide lay-friendly, state-of-the-science education, promote collaboration, and provided networking opportunities across the melanoma community.
Melanoma Free & Living Scan-to-Scan
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 4 March 2022 In Melanoma Stories
In 2007, while staining her deck at home, Debra Likes – who goes by Debbie – decided she’d had enough and would finally see her primary care doctor. She had been ignoring a mole on her left calf for more than a year as she watched it slowly transform from a round...
7200 Miles for 7200 Lives Lost: Cycling and Community Building After a Melanoma Diagnosis
By Renee Orcione, MRA Digital Engagement & Communications Manager | 23 February 2022 In Allies & Partnerships, Melanoma Stories
Last year in the US, there were an estimated 7,180 deaths from melanoma. For melanoma patient and competitive cyclist Bill Evans, this number is on his mind every single day. Two years into his own journey with advanced melanoma, Bill is raising awareness and funds for melanoma research through cycling, with a goal of completing one mile for every life lost to the disease over the course of a year.
Preventing Melanoma Among Hispanic Americans
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 22 February 2022 In Melanoma Stories, Prevention, Science
Dr. Costello’s online platform aims to teach participants about the risk factors for melanoma, what it looks like, and how they can screen themselves for concerning lesions. Costello’s program launched in February, 2022; and he hopes to get 30,000 people to participate in the 40-minute curriculum by the end of May 2022.
From Personal Loss to Professional Service
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 25 January 2022 In Allies & Partnerships, Melanoma Stories
Since 2009, O’Melveny & Myers (OMM), an internationally recognized law firm founded in 1885, has served as pro bono counsel for the Melanoma Research Alliance. Over the last decade, the firm has advised MRA leadership and represented the organization in many areas, including grant agreements, HR policies, tax issues, intellectual...
Championing Clinical Trials
By Cody Barnett, MPH, MRA Senior Director of Communications & Patient Engagement | 2 January 2022 In Melanoma Stories, Science, Treatment
Too often, the first time someone is exposed to clinical trials is when they've been diagnosed with a serious, life threatening illness. Learn how Mary Elizabeth partnered with her doctor Jedd Wolchok to take back control from melanoma.